Patient Lannie Adamowicks on her diagnosis of Sezary syndrome and her experience as participant of a clinical trial for patients with this condition.
Lannie Adamowicks and Dr. Kevin Cooper discuss Sezary Syndrome a form of Cutaneous T Cell Lymphoma from a patient and physician perspective. Dr. Cooper also discusses the mechanism of action of the investigational treatment Lannie currently receives at University Hospitals Cleveland Medical Center.
Lannie Adamowicks was diagnosed with Sezary Syndrome by Dr. Cooper in 2014. Sezary Syndrome is a type of leukemia of the T lymphocytes. These cells are numerous in the blood and also migrate into the skin. Eventually, the malignant T cells can involve the lymph nodes and other body organs. Some of the symptoms associated with Sezary Syndrome include generalized redness of the entire skin and inability to regulate body temperature. After failing several other treatments, Dr. Cooper recommended that Lannie start on one of our UH clinical trials. The investigational treatment uses an antibody that targets the malignant T cells.
Lannie states she noted significant improvement of her condition within a few weeks of receiving her first infusions. She noted her hair growing back, her skin lesions resolving, and her energy back. She now works full time and has the energy to spend quality time with her family, something she never thought she would be able to do again. Lannie is very appreciative and feels very fortunate to have been able to participate in this clinical trial which has saved her life.
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